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Living With Genetic Disorders

19 minutes

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Four young adults with genetic disorders describe their personal struggles and triumphs and how cystic fibrosis, sickle cell, hemophilia, and Huntington's disease have changed their lives and their outlook on life. The video provides students with the basic biological facts necessary to understand how genes work and how genetic disorders are transmitted from one generation to the next. The four young adults relate their experiences growing up with these disorders and talk candidly about how their conditions affected their lives and their relationships with peers. Students will gain insights into the strategies these young people have used to cope with being different and will leave the video with a new appreciation of others in their school and community who may have similar afflictions. In a special, extended bonus interview, Katie discusses her range of emotions from anger, to denial, and eventually to acceptance after learning that she inherited the gene for Huntington's disease, a disease whose symptoms normally first appear in mid-adulthood and get worse over time.

Media Details

Runtime: 19 minutes

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